About AspireCURES
Human-powered help for families facing rare brain disease.
At AspireCURES, we believe no one should face a rare brain disease alone, or have to navigate the maze of research and clinical trials by themselves. We are a patient-matching organization for people living with leukodystrophies, white matter diseases, and related rare brain diseases. Our mission is to connect patients and families with the clinical trials, research studies, genetic testing, specialists, and advocacy opportunities that fit their diagnosis and their goals.
What sets us apart is that our matching is powered by real people, not an algorithm. When you register, a member of our team personally reviews your information and looks for the studies and resources that are right for you.
Our services are always free for patients.
Our team
Heidi Edwards
Chief Executive Officer & President
Heidi founded AspireCURES to give families facing rare brain disease the guidance she once went looking for herself. She cared for her twin sister, Holly, through ALSP and has lost five family members to the disease. In 2020 she founded the Sisters' Hope Foundation, a nonprofit supporting ALSP families, and she brings that lived experience and deep community relationships to connecting patients with the research, trials, and specialists that can help.
Logan Edwards
Chief Technology Officer
Logan builds and maintains the technology behind AspireCURES, from the patient-matching workflow to this website. He works in nonprofit patient advocacy, technical support, and data management, and serves on the board of the Sisters' Hope Foundation.
A community we stand with
We are proud of our close relationship with the Sisters' Hope Foundation, a nonprofit dedicated to supporting, educating, and advocating for families affected by ALSP.
Questions? We would love to hear from you at heidi\@aspirecures.com.